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Listed below are websites containing resources and information that is very helpful to many people suffering from epilepsy. Also listed below are websites that offer discussion forums, chat rooms, and other opportunities to allow you to share your experiences and thoughts about epilepsy.
Please note that the Epilepsy and Seizure Association of Manitoba does not necessarily endorse the views or opinions expressed on these sites. Any individual using online forums should be mindful of issues of disclosure, confidentiality, and information sources.
Resources and Information
Manitoba Housing
Manitoba Housing provides a wide range of subsidized housing throughout the province of Manitoba.
http://www.gov.mb.ca/housing/
Winnipeg Harvest
Winnipeg Harvest is a not-for-profit, community-based organization committed to providing food to people who struggle to feed themselves and their families.
http://winnipegharvest.org/need-help/need-food/
Manitoba Pharmacare Program
Pharmacare is a drug benefit program for eligible Manitobans, regardless of disease or age, whose income is seriously affected by high prescription drug costs.
https://www.gov.mb.ca/health/pharmacare/index.html
WRHA-Find A Family Physician
The Family Doctor Finder helps to connect Manitobans to a family doctor, nurse practitioner or paediatrician. If you live in Manitoba and need a regular health care provider you can call the line to register with the program.
http://www.wrha.mb.ca/healthinfo/findadoc.php
Drug Shortages Canada
Drug Shortages Canada is the website for reporting drug shortages and discontinuations in Canada. Drug sellers must report when they are not able to meet demand for a product or when they stop selling a product. People may create drug shortage notification “reports” for specific medications consisting of an alert sent to their email when a report is issued for this medication.
https://www.drugshortagescanada.ca/
Canada Revenue Agency-Tax Credits and Deductions for Persons With Disabilities
Tax credits and deductions are available for persons with disabilities, their supporting family members, and their caregivers.
https://www.canada.ca/en/revenue-agency/services/tax/individuals/segments/tax-credits-deductions-persons-disabilities.html
Registered Disability Savings Plan (RDSP)
A registered disability savings plan (RDSP) is a savings plan that is intended to help parents and others save for the long term financial security of a person who is eligible for the disability tax credit (DTC).
https://www.canada.ca/en/revenue-agency/services/tax/individuals/topics/registered-disability-savings-plan-rdsp.html
Children’s disABILITY Services, Government of Manitoba
This program, provided through Manitoba Department of Families, supports families who are raising a child (or children) with developmental and physical disabilities, to meet some of the additional needs they may have.
https://www.gov.mb.ca/fs/cds/index.html
Society for Manitobans With Disabilities (SMD)
SMD is a family of organizations that are working together to improve the lives of persons with disabilities in Manitoba.
https://www.smd.mb.ca/
MSAR Elite Service Dogs
MSAR is an organization that was started by the First Nations to serve the following needs:
1. MSAR Working Dogs for local, national and international service
2. MSAR Elite Service Dogs
3. MSAR Therapy Dogs
4. MSAR Dog Training
http://msar.ca/
Lions Foundation of Canada
Before becoming its own distinct program in 2001, Dog Guides for people with epilepsy were trained under the Service (formerly Special Skills) program. Since becoming a separate program, these Dog Guides have gained greater recognition for the incredible service they provide to their handlers.
Trained to assist individuals 6 years of age or older with epilepsy, Seizure Response Dog Guides are capable of activating an alert system or barking for help in the event of a seizure.
https://www.dogguides.com/seizure.html
Employment and Income Assistance (EIA)
The Employment and Income Assistance Program (EIA) provides financial help to Manitobans who have no other way to support themselves or their families. Information on eligibility, coverage offered, and how to apply.
http://www.gov.mb.ca/fs/eia/
Manitoba Human Rights Commission
The Manitoba Human Rights Commission is an independent agency of the Government of Manitoba and is responsible for administering The Human Rights Code.
http://www.manitobahumanrights.ca/v1/
Seizure Prevention Clinic, Health Sciences Centre
Contact information for Adult Seizure Clinic at HSC, where the epileptologists are located.
http://www.hsc.mb.ca/patientsOCAdult.html
Reaching E-quality Employment Services
Reaching E-Quality Employment Services (REES) is an established, community-based employment service with a consistent track record of assisting people with physical disabilities or health conditions to gain employment, since 1989.
http://www.re-es.org/
​Manitoba Public Insurance (MPI), Medical Standards For Driving
https://www.mpi.mb.ca/en/DL/DL/MedCondAndDrivingForHealthCareProf/pages/medicalstandards.aspx
https://www.mpi.mb.ca/en/PDFs/MedicalConditionsDriving.pdf
Embrace Watch
The Embrace watch is linked to the wearer’s mobile device with a Bluetooth® connection. This connection allows our systems to analyze the information and detect unusual events like convulsive seizures in real-time.
https://www.empatica.com/embrace-watch-epilepsy-monitor
SmartWatch
SmartWatch is an easy-to-use, non-invasive wristwatch that continuously monitors movements and instantly alerts connected family members and caregivers upon the onset of repetitive, irregular shaking motion.
http://smart-monitor.com/about-smart-watch/
SAMi, The Sleep Activity Monitor
SAMi™ is a sleep activity monitor for anyone (caregivers and individuals) who needs to watch carefully for unusual movements at night. During sleep, audio-video information from a remote infrared video camera is sent to an app that runs on an iOS device such as an iPhone or iPod Touch. The SAMi app records and analyzes the video for unusual activity. When an unusual event is detected, it sounds an alarm and records live audio and video from the SAMi network camera.
https://www.samialert.com/
Medic Alert Foundation Canada
For over 55 years MedicAlert has been providing Canadians with lifesaving service and protection. Provider of MedicAlert jewelry and other services.
https://www.medicalert.ca/
Discussion Forums and Chat Rooms
Purple Day
Main website for information on Purple Day for Epilepsy Awareness.
http://www.purpleday.org/
Coping With Epilepsy
Free online forum for chat and support.
http://www.coping-with-epilepsy.com/forums/
My Epilepsy Team
Online support and social network for persons living with epilepsy.
https://www.myepilepsyteam.com/
Epilepsy Foundation
Online community forum for support and resources.
http://www.epilepsy.com/forum-topics
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